about me

After living years in a part-time kind of way I eventually found out why. May 2009 I was diagosed with Postural Orthostatic Tachycardia Syndrome (P.O.T.S). A year later in April 2010 I was diagnosed with a connective tissue disorder, Ehlers Danlos (EDS). EDS is a degenerative genetic condition, 80% of people with EDS suffer with POTS. Lucky me!

Two years down the line I'm still trying to understand why? The symptoms are many and varied, from head to toe, day to day, morning till night. Each day different, sometimes each hour can be altered all depending on my symptoms.

Oh I also have Chronic Fatigue.

This blog hopefully tells my story, the ups and the downs. I'm determined to find the good things in life.