i had been putting off calling the genetics professor for a few weeks now. two weeks ago his secretary informed me a letter was in the post dealing with my referral. however i knew a phonecall was inevitable so i called her today to see what was going on.
she took my number and was going to call back with the info.
ring,ring,ring,ring, i picked the phone up thinking it was her, however it was the first neuros secretary calling to ask me whether i would like to take part in a health weekend. the jist of it was, junior docs are taking exams in two weeks time they would like to question me on my condition and see whether they can name the condition by the symptoms i describe. like name that tune, only with bodies!!! i said that i would think about it so shes sending me some bumph. the only reason i would consider taking part would be to spread the word on ehlers danlos/pots. so others wont have to suffer like i and many others do. mmmm its a toughy. let the freak show commence!!!
then the genetics secretary phoned, i have to speak to a counsellor before they will test me for vascular eds, why? i just want to get it over and done with, no ones going to change my mind. i think if i was fit and healthy then possibly i wouldnt want to know, but im not.