i was awoken at 7am this morning. fuzzy headed. friday. ah doctors appointment. as i lay there, not really with it, knowing i couldnt go back to sleep otherwise i would not be coherent, i thought what is this all about?
you read, or see news items where 'other people' have genetic conditions that play havoc with their lives. you dont actually experience it yourself, its always so and so. armed with my little envelope of letters, i got up at 8.15am, sat down brushed my hair, sat down cleaned my teeth, made sure i used to the loo before going downstairs as i knew i wouldnt have the ommph to go back upstairs this early in the morning. placed rosie in the kitchen, and off to the appointment.
first time in a while i got jittery, i had only taken my medication so the tabs hadnt kicked in properly yet and my pulse was 68bpm which for normal individuals is great, to me its like ive been running, i like a pulse in the 40s as im not so anxious. i had butterflies in the waiting room, told myself off and distracted my brain looking at the leaflets even if i couldnt read them properly due to early morning blurry vision. my name was called out and in i was pushed.
i had a list of four things, due to my foggy brain i always forget, first on list referral to hypermobility clinic, me; i would like to be referred to a hypermobility clinic as dr d at kings thinks i should get tested, dr; well i wouldnt know who to send you too.
boom, here we go again, after last year lots of promises of support and understanding from my gp, amount to nothing. luckily i had read alot on the subject, so had my piece of paper with prof g, address,fax,telephone no. i would like to go private due to the waiting times. a bit stern faced, what is their problem? also when i have finished these tests would like to be referred to a pots specialist as im seeing a geriatric (no laughs please) specialist at present. gp; well im not sure, me; i will pay, there is a specialist in queens square london; gp; well that would be very expensive for all the tests, me; the only other option is to stay like this.
i really have changed my opinion of doctors. i thought that they were all for the good of the patient. now as i sit there listening to blatant lies, as sometimes they are, i know that i have to guide myself through this maze. be assertive, not take no for an answer.