i was riding the wave of ehlers-pots, for over a year now. moaning at times when really i shouldnt, because whats the odd headache,bowel ache, backache, etc. i coped, managed as best i could.
the last couple of days, as my previous post said, i was experiencing a little nausea, something which i have in the past, took the tablets, felt better. im suppose to take my bp and pulse more regularly then i do. yesterday morning i went to croydon to do some shopping, having a cuppa in m&s i felt a bit dodgy. usually a caffeine boast makes me feel better, so i was puzzled as to why i just wanted to go home and crawl into bed. i took my pulse whilst sitting in the car and it was 36bpm, and it stayed that way. on returning home i got the bp machine out 39bpm and blood pressure was up.
few months back the doc wanted me to up my beta blockers to 45mg, from 40mg per day. which i did, i also knew that my resting heart rate would go down, down, down. why didnt i listen to myself, why didnt i refuse to up my dose. well this is the effects.
nhs direct was called, i spoke to a doctor, who hadnt a clue about midodrine, ehelrs,pots etc. he told me not to take the bb, or the fludrocortisone, and get in touch with my consultant on monday. i took heed, stopped the tabs and will speak to dr a, on monday.
i shall not complain about all my normal day niggles from now on. floating along, not taking a dip, will do just fine with me.