12 August 2010

pussy-cat pussy-cat where have you been.......



well not quite. the queen wasnt in, although we did visit her home. mum has wanted to take a snoop around the palace for some years now. so wednesday we booked the car in and trooped up to the palace. got stuck in traffic, with five minutes to spare we entered the grounds at the front of the house. simply because im in a wheelchair (thanks ehlers i knew you would come in handy one day). people peered into the car as we drove across the drive, maybe thinking we were a vip. not us. climbing into a golf buggy the trip began. the house itself was amazing. yet the stuff wasnt my thing. although my mum and sister enjoyed popping on the headphones and taking time viewing the treasures. afterwards had a cuppa on the terrace, beautiful views over the garden. then a shuffle and a push through the garden out onto the road. a half mile walk back to the front and once again a drive across the gravel, the police with machine guns were a little alarming, yet quite normal for london unfortunately.


ive had a banging headache since wednesday, touch wood its eased a little today, my heads foggy so apologize for the confusing post, (if it is confusing,because my head is telling me so). i feel like ive run a marathon. with the weekend being quite painful i didnt think i would be able to make it.

living so near london you tend not to do touristy things. some other trips are planned, the london eye, harrods, kew gardens, tate modern. and im sure i will have many after effects which is just the price you pay for a few hours of enjoyment. never mind.



why couldnt ehelrs be given to somebody stronger than myself to cope with, i said aloud today to mum. im such a wuss where illness is concerned. i would be running a mile if someone close to me was experiencing this, yet i have to stay put because its me.

5 comments:

agoraphob said...

So sorry you have to deal with this illness. I wish I had something to say to make it better.

Seems like you ARE strong and you ARE dealing with it the best you know how to.

Beautiful palace. I would like to see the inside, but I am not flying over the pond anytime soon! Maybe some day....

Nechtan said...

Hi Em,

You asked why couldn't Ehlers be given to someone stronger. The more I read your posts the more I think you are stronger than you think. Even when its hard you push yourself.

Well done. Reads like a great day out. On one hand its not my thing either but on the other hand I know I would enjoy having a snoop and soaking up the history with the headphones. Like you say we tend not to do the touristy things when they are on our doorstep. I'm glad you have more trips planned. Make sure you charge your camera when you go to Kew, its a place I would love to visit one day.

All the best

Nechtan

Em said...

hi shelley

thanks, john thaw an english actor that was, was told that he was brave fighting his battle against cancer, his reply was ' i have no choice'. i kind of get what he was saying. ive been given this disease and i have to deal with it. times can be so tough, especially when you dont feel brave.

im sure you will someday soon get on the plane, youve been making strides in progress recently. you wont give up its not in you too. your blog is an inspiration. em.x


hi nechtan

b. palace, mum has always wanted to visit. so i thought all that she has done for me over this past year when times were tough, well she deserves a treat. i found the articles a little boring, but overall im glad i went. will certainly takes some snaps of kew to show you. x

Achelois said...

Em you are strong, its old Ehlers that is weak. He's got to me this week as well. What I see is that you are a whole lot stronger than you think. It doesn't make it any better does it that no one has ever heard of it or even gets it really. It is a little understood condition that is a really tough call to live with.

You do a whole lot more stuff most weeks than I do so please don't be so ready to do yourself down.

I see a beautiful young woman living with a cruel and painful condition which I wouldn't wish on my worst enemy. Although in saying that I am not sure I a have a worst enemy, at least I hope not but you know what I mean.

xoxoxoxoxoxoox

Em said...

hi achelois

what a condition to have. i wish it was more well known, at least then they may be more understanding. when people ask whats wrong i feel like saying dont bother asking you wont know. i tell, they shake there head, you know the story. i shall plod on, as always. thanks. x