i had an appt at kings today with the cardiologist. i was thinking i would be informed about the previous tests i had the last quarter of 2010, then sent on my way. i was feeling very tired and worn out, had my blood pressure taken, and ecg, then sent to the waiting room to wait. an hour later i was called into to the dr.g.
i found i could concentrate more as there were no other drs in the room. i was able to focus on what was being said. dr g and dr d work together, dr d is a neurologist who finally diagnosed p.o.t.s with the autonomic function test, then sent me on to get diagnosed with ehlers danlos.
i spent 30 minutes chatting over my case. yes thirty minutes on the nhs is a lifetime! both the drs have an interest in pots, so i was getting a perspective close to his knowledge. i was told i was a bad case, yes truly i was. that he only has another two or so patients on the concoctions of tablets that i am on. i was advised the typical tips, compressions hose,4 litres of water per day. also he mentioned a conference in birmingham each october where pots patients meet along with drs, so maybe that will be an idea to think over.
i came away feeling like i was doing all that i could to help the pots. i knew that i was feeling awful, he just confirmed this, which in a odd way was nice.
he also mentioned when i said that i first fainted at the age of 13 it was due to hormonal changes in my body that could of set off a pots attack, i remember having one month off of school, feeling pretty damn awful, nausea, loss of appetite, loss of weight, dizziness the usual symptoms. i wasnt going crazy i experienced a pots attack and never knew.
how do i feel about this now, bit cheated, i always felt like i was weak willed, my brain wouldnt let me down but my body did. i would always push myself, harder yet my faulty body wouldnt work. i still dont fully believe that there is anything wrong.